000			02855nam a2200433 i 4500
001			CR9781108675789
003			UkCbUP
005			20240920172323.0
006			m|||||o||d||||||||
007			cr||||||||||||
008			170815s2022||||enk o ||1 0|eng|d
020			_a9781108675789 (ebook)
020			_z9781108426640 (hardback)
020			_z9781108445368 (paperback)
040			_aUkCbUP _beng _erda _cUkCbUP
050	0	0	_aK3611.R43 _bS53 2022
082	0	0	_a344.03/21 23/eng/20220204
245	0	0	_aSharing linked data for health research : _btoward better decision making / _cedited by Carolyn Adams, Macquarie University Law School, Judy Allen, University of Western Australia, Felicity Flack, University of Western Australia.
264		1	_aCambridge, United Kingdom ; New York, NY : _bCambridge University Press, _c2022.
300			_a1 online resource (xxi, 252 pages) : _bdigital, PDF file(s).
336			_atext _btxt _2rdacontent
337			_acomputer _bc _2rdamedia
338			_aonline resource _bcr _2rdacarrier
490	1		_aCambridge bioethics and law
500			_aTitle from publisher's bibliographic system (viewed on 10 Jun 2022).
505	0		_aIntroduction -- Research using linked data -- Individual, collective, and public interests -- Social licence -- Human rights -- Research ethics -- Law -- Existing practice and processes -- Better practice and processes.
520			_aHealth research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address "wicked problems" in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.
650		0	_aMedical records _xAccess control _zEnglish-speaking countries.
650		0	_aData protection _xLaw and legislation _zEnglish-speaking countries.
650		0	_aMedicine _xResearch _xLaw and legislation _zEnglish-speaking countries.
650		0	_aLinked data _xGovernment policy _zEnglish-speaking countries.
700	1		_aAdams, Carolyn, _d1962- _eeditor.
700	1		_aFlack, Felicity, _d1969- _eeditor.
700	1		_aAllen, Judy, _d1953- _eeditor.
776	0	8	_iPrint version: _z9781108426640
830		0	_aCambridge bioethics and law.
856	4	0	_uhttps://doi.org/10.1017/9781108675789
942			_2ddc _cEB
999			_c9521 _d9521