TY  - BOOK
AU  - Adams,Carolyn
AU  - Flack,Felicity
AU  - Allen,Judy
TI  - Sharing linked data for health research: toward better decision making 
T2  - Cambridge bioethics and law
SN  - 9781108675789 (ebook)
AV  - K3611.R43 S53 2022
U1  - 344.03/21 23/eng/20220204 
PY  - 2022///
CY  - Cambridge, United Kingdom ; New York, NY
PB  - Cambridge University Press
KW  - Medical records
KW  - Access control
KW  - English-speaking countries
KW  - Data protection
KW  - Law and legislation
KW  - Medicine
KW  - Research
KW  - Linked data
KW  - Government policy
N1  - Title from publisher's bibliographic system (viewed on 10 Jun 2022); Introduction -- Research using linked data -- Individual, collective, and public interests -- Social licence -- Human rights -- Research ethics -- Law -- Existing practice and processes -- Better practice and processes
N2  - Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address "wicked problems" in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise
UR  - https://doi.org/10.1017/9781108675789
ER  -