NLU Meghalaya Library

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Protecting genetic privacy in biobanking through data protection law / Dara Hallinan.

By: Material type: TextSeries: Oxford scholarship onlinePublisher: Oxford : Oxford University Press, 2021Edition: First editionDescription: 1 online resource (304 pages)Content type:
  • text
Media type:
  • computer
Carrier type:
  • online resource
ISBN:
  • 9780191918919 (ebook) :
Subject(s): Additional physical formats: Print version :: No titleDDC classification:
  • 342.240858 23
LOC classification:
  • KJE1626
Online resources: Biobanks are critical infrastructure for medical research but they are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25th May 2018 the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking in Europe.
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This edition also issued in print: 2021.

Includes bibliographical references and index.

Biobanks are critical infrastructure for medical research but they are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25th May 2018 the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking in Europe.

Specialized.

Description based on online resource; title from home page (viewed on March 12, 2021).

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