MARC details
| 000 -LEADER |
|---|
| fixed length control field |
05038nam a2200445 i 4500 |
| 001 - CONTROL NUMBER |
|---|
| control field |
CR9781108874106 |
| 003 - CONTROL NUMBER IDENTIFIER |
|---|
| control field |
UkCbUP |
| 005 - DATE AND TIME OF LATEST TRANSACTION |
|---|
| control field |
20240905185136.0 |
| 006 - FIXED-LENGTH DATA ELEMENTS--ADDITIONAL MATERIAL CHARACTERISTICS |
|---|
| fixed length control field |
m|||||o||d|||||||| |
| 007 - PHYSICAL DESCRIPTION FIXED FIELD--GENERAL INFORMATION |
|---|
| fixed length control field |
cr|||||||||||| |
| 008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION |
|---|
| fixed length control field |
190930s2021||||enk o ||1 0|eng|d |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER |
|---|
| International Standard Book Number |
9781108874106 (ebook) |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER |
|---|
| Canceled/invalid ISBN |
9781108836616 (hardback) |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER |
|---|
| Canceled/invalid ISBN |
9781108812672 (paperback) |
| 040 ## - CATALOGING SOURCE |
|---|
| Original cataloging agency |
UkCbUP |
| Language of cataloging |
eng |
| Description conventions |
rda |
| Transcribing agency |
UkCbUP |
| 050 00 - LIBRARY OF CONGRESS CALL NUMBER |
|---|
| Classification number |
K3611.G46 |
| Item number |
C66 2021 |
| 082 00 - DEWEY DECIMAL CLASSIFICATION NUMBER |
|---|
| Classification number |
344.04/196 |
| Edition number |
23 |
| 245 00 - TITLE STATEMENT |
|---|
| Title |
Consumer genetic technologies : |
| Remainder of title |
ethical and legal considerations / |
| Statement of responsibility, etc. |
edited by I. Glenn Cohen, Harvard Law School, Nita A. Farahany, Duke University School of Law, Henry T. Greely, Stanford Law School, Carmel Schachar, Harvard Law School. |
| 264 #1 - PRODUCTION, PUBLICATION, DISTRIBUTION, MANUFACTURE, AND COPYRIGHT NOTICE |
|---|
| Place of production, publication, distribution, manufacture |
Cambridge : |
| Name of producer, publisher, distributor, manufacturer |
Cambridge University Press, |
| Date of production, publication, distribution, manufacture, or copyright notice |
2021. |
| 300 ## - PHYSICAL DESCRIPTION |
|---|
| Extent |
1 online resource (x, 291 pages) : |
| Other physical details |
digital, PDF file(s). |
| 336 ## - CONTENT TYPE |
|---|
| Content type term |
text |
| Content type code |
txt |
| Source |
rdacontent |
| 337 ## - MEDIA TYPE |
|---|
| Media type term |
computer |
| Media type code |
c |
| Source |
rdamedia |
| 338 ## - CARRIER TYPE |
|---|
| Carrier type term |
online resource |
| Carrier type code |
cr |
| Source |
rdacarrier |
| 500 ## - GENERAL NOTE |
|---|
| General note |
Title from publisher's bibliographic system (viewed on 27 Aug 2021). |
| 505 0# - FORMATTED CONTENTS NOTE |
|---|
| Formatted contents note |
Liability implications of direct-to-consumer genetic testing / Gary E. Marchant, Mark Barnes, Ellen W. Clayton, and Susan M. Wolf -- Consuming genetics as a life insurance consumer / Anya E. R. Prince -- In favor of an action for genetic conversion / Jessica L. Roberts -- Direct-to-consumer genomics and personal health data / Jorge L. Contreras -- Governance in the era of CRISPR and DIY-Bio regulatory guidance of human genome editing at the national and global levels / Scott J. Schweikart -- Noninvasive prenatal genome sequencing ethical and policy post-birth implications / Vardit Ravitsky -- The myth of "anonymous" gamete donation in the age of direct-to-consumer genetic testing / Seema Mohapatra -- Improving commercial genetic data-sharing policy / Kayte Spector-Bagdady -- Genetic paparazzi / Yaniv Heled and Liza Vertinsky -- Programming our genomes, programming ourselves : the moral and regulatory challenge of regulating do-it-yourself gene editing / Barbara J. Evans -- Governing nontraditional gene editing / Maxwell J. Mehlman and Ronald A. Conlon -- Finding a regulatory balance for genetic biohacking / Patricia J. Zettler, Christi J. Guerrini, and Jacob S. Sherkow -- Generational failures of law and ethics : rape, Mormon orthodoxy, and the revelatory power of ancestry DNA / Kif Augustine-Adams -- Precision medicine and the resurgence of race in genomic medicine / Jonathan Kahn -- Losing our minds? direct-to-consumer genetic testing and Alzheimer's disease / Emily Largent -- Investigative genetic genealogy and the problem of familial forensic identification / Natalie Ram -- An ethical framework for genetic counseling in the genomic era / Leila Jamal, Will Schupmann, and Benjamin E. Berkman -- Physician-mediated elective whole genome sequencing tests : impacts on informed consent / Emily Qian, Magalie Leduc, Rebecca Hodges, Bryan Cosca, Ryan Durigan, Laurie McCright, Doug Flood, and Birgit Funke -- Privacy best practices for direct-to-consumer genetic testing services : are industry efforts at self-regulation sufficient? / James W. Hazel -- Regulatory and medical aspects of direct-to-consumer genetic testing / Catherine M. Sharkey, Xiaohan Wu, Michael F. Walsh, and Kenneth Offit. |
| 520 ## - SUMMARY, ETC. |
|---|
| Summary, etc. |
For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing reveal intensely personal and private information. As these technologies become increasingly available as consumer products, the ethical, legal, and regulatory challenges presented by genomics are ever looming. Assembling multidisciplinary experts, this volume evaluates the different models used to deliver consumer genetics and considers a number of key questions: How should we mediate privacy and other ethical concerns around genetic databases? Does aggregating data from genetic testing turn people into products by commercializing their data? How might this data reduce or exacerbate existing healthcare disparities? Contributing authors also provide guidance on protecting consumer privacy and safety while promoting innovation. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
|---|
| Topical term or geographic name entry element |
Human chromosome abnormalities |
| General subdivision |
Diagnosis |
| -- |
Law and legislation. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
|---|
| Topical term or geographic name entry element |
Data protection |
| General subdivision |
Law and legislation. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
|---|
| Topical term or geographic name entry element |
Privacy, Right of. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
|---|
| Topical term or geographic name entry element |
Medical genetics |
| General subdivision |
Law and legislation. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
|---|
| Topical term or geographic name entry element |
Human genetics |
| General subdivision |
Law and legislation. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
|---|
| Topical term or geographic name entry element |
Human chromosome abnormalities |
| General subdivision |
Diagnosis |
| -- |
Moral and ethical aspects. |
| 700 1# - ADDED ENTRY--PERSONAL NAME |
|---|
| Personal name |
Cohen, I. Glenn, |
| Relator term |
editor. |
| 700 1# - ADDED ENTRY--PERSONAL NAME |
|---|
| Personal name |
Farahany, Nita A., |
| Relator term |
editor. |
| 700 1# - ADDED ENTRY--PERSONAL NAME |
|---|
| Personal name |
Greely, Henry T., |
| Relator term |
editor. |
| 700 1# - ADDED ENTRY--PERSONAL NAME |
|---|
| Personal name |
Schachar, Carmel, |
| Dates associated with a name |
1985- |
| Relator term |
editor. |
| 776 08 - ADDITIONAL PHYSICAL FORM ENTRY |
|---|
| Relationship information |
Print version: |
| International Standard Book Number |
9781108836616 |
| 856 40 - ELECTRONIC LOCATION AND ACCESS |
|---|
| Uniform Resource Identifier |
<a href="https://doi.org/10.1017/9781108874106">https://doi.org/10.1017/9781108874106</a> |
| 942 ## - ADDED ENTRY ELEMENTS (KOHA) |
|---|
| Source of classification or shelving scheme |
Dewey Decimal Classification |
| Koha item type |
eBooks |
